Chicago Area Patient Centered Outcomes Research Network (CAPriCORN) Approved for $8 Million in Second Phase of Development of PCORnet, a New National Clinical Research Network

By: 
Heather M. Tarczan, Illinois Medical District
Post date: 
August 3, 2015

 

The Chicago Area Patient Centered Outcomes Research Network (CAPriCORN) has been approved for a three-year $8 million funding award by the Patient-Centered Outcomes Research Institute (PCORI) as part of the second phase of the development of PCORnet, the National Patient-Centered Clinical Research Network.

This funding award continues PCORI’s support for CAPriCORN’s participation in PCORnet, a large, collaborative research initiative designed to link researchers, patient communities, clinicians, and health systems in productive research partnerships that leverage the power of large volumes of health data maintained by the partner networks. PCORnet will enable the nation to conduct clinical research more quickly and less expensively than is now possible and will ensure that research focuses on the questions and outcomes that matter most to patients and those who care for them.

PCORI provided $7 million to CAPriCORN during the first phase of PCORnet's development, which began in the spring of 2014. As one of 34 health data networks that together make up this national clinical research resource in Phase II, CAPriCORN is contributing expertise and resources focused on improving health outcomes and driving down costs for both rare and common conditions including sickle cell disease, asthma, anemia, recurrent clostridium difficile, obesity and diabetes, from patients in the Chicago area.

Participating healthcare delivery institutions include:

  • Alliance of Chicago Community Health Services
  • Ann & Robert H. Lurie Children's Hospital of Chicago
  • Cook County Health and Hospitals Systems
  • Loyola University Chicago/Loyola University Health System
  • NorthShore University HealthSystem
  • Northwestern University· Rush University Medical Center
  • University of Chicago Medicine
  • University of Illinois Hospital and Health Sciences System / University of Illinois at Chicago
  • Veterans Affairs Medical Centers (Hines, Jesse Brown)

Other CAPriCORN partners include:

  • The Chicago Community Trust (CCT)
  • Illinois Medical District Commission (IMDC)
  • Medical Research Analytics and Informatics Alliance (MRAIA)
  • Center for Medical Technology Policy
  • Clinical Directors Network
  • RAND
  • Tufts Medical Center
  • Vanderbilt University

The new funding award will support CAPriCORN’s continuing efforts to for numerous activities across the CAPriCORN initiative, including: compiling clinical data; designing systems to conduct Comparative Effectiveness Research trials and observational studies in the Chicago area and nationally; establishing procedures for clinical data standardization and sharing across participating healthcare delivery institutions that can be used for performance measurement and quality improvement; engaging patients, clinicians and health system leadership in governance and use of CAPriCORN data resources; and recruiting and surveying clinical research study participants.

CAPriCORN will allow tracking of the medical outcomes of more than 3 million patients receiving ongoing care at the participating institutions. This is a critical new resource to accelerate biomedical progress and will allow for earlier warnings about unknown drug side
effects with newly approved medicines and earlier outcomes with new medical devices, as examples.

“This unprecedented collaboration continues to bring the most talented researchers and medical professionals together to help fight chronic diseases that impact millions of Americans,” Terry Mazany, President & CEO of the Chicago Community Trust said. “This
initiative has already brought new and exciting secondary opportunities to the CAPriCORN team including participation of our researchers in a national aspirin study.”

“We're pleased that CAPriCORN has been approved for this funding support to continue our productive mutual efforts to build what we intend to be a premier national resource for conducting high-quality, patient-centered clinical research," said PCORI Executive Director Joe Selby, MD, MPH. “I greatly appreciate the contributions of all the PCORnet partners during Phase I, which readied PCORnet for a robust start on an exciting second phase of expansion and the launch of several research studies."

The funding award to CAPriCORN has been approved by PCORI’s Board pending completion of a business and programmatic review by PCORI staff and negotiation of a formal award contract. PCORI is an independent, non-profit organization authorized by Congress in 2010 to fund research that will provide patients, their caregivers and clinicians with the evidence-based information they need to make better-informed healthcare decisions. PCORI is committed to continuously seeking input from a broad range of stakeholders to guide its work. More information is available at www.pcori.org.