Ethical Issues in Community Engaged Research Workshop
8:30 – 9:00 am Registration and breakfast
9:00am – 9:15 Welcome and Opening Remarks
9:15 – 3:00 pm Panels
Lunch will be provided to enrolled participants
9:15-10:45 am Community Engaged Research and Identity as an Insider, Outsider, or Anything In-Between
This panel will focus on the interesting challenges that arise when you conduct research with a community of which you are an insider, an outsider, or somewhere in between.
Moderator: Lena Hatchett, PhD, Associate Professor, Loyola University Chicago, Neiswanger Institute for Bioethics
Dr. Hatchett, is Director of Community and University Partnerships in the Stritch School of Medicine, Loyola University Chicago. She leads the institution in health equity research and education through program and policy development. She received her PhD in Social and Health Psychology from State University of New York Stony Brook and her post-doctoral training in Community and Prevention Research from University of Illinois at Chicago School of Public Health. Dr. Hatchett’s research reduces racial and economic health disparities. To improve the local food systems, Dr. Hatchett co-founded the Maywood Multicultural Farmers Market and the Cook County Green Corps, a youth green job training program. On-going projects include Proviso Partners for Health, a multi-sector coalition to promote food justice through policy, system, and environmental change. She co-founded the coalition with community organizations to support over 25 youth serving organizations from the business, health, and community sectors. Learn more.
Sarah Abboud , PhD, RN, Assistant Professor, UIC College of Nursing
Dr. Abboud’s research work centers on the intersections of ethnicity, sexuality, gender, health, and immigration among immigrants, ethnic minorities, sexual and gender minorities in the United States, in particular Arabs and Arab Americans, and in Lebanon. Her work is informed by social justice, intersectionality, and health equity frameworks and aims at decreasing the significant health disparities faced by marginalized populations. Along with research work, Dr. Abboud has extensive experience in sexual health, qualitative research methods, mixed methods, and community-based participatory research approaches. Learn more.
Nareman Taha, MPS, Co-Director and Co-Founder, Arab American Family Services
Nareman is Co-founder and Director of Arab American Family Services (AAFS) established in 2001. As a community catalyst, Nareman devotedly coordinates the agency’s efforts to identify and eradicate barriers to the participation of Arab/Muslim based/community groups in accessing services. Nareman is a highly accomplished, passionate and motivated public service leader. She has a broad background in community development and social service delivery at the local, state and federal levels, as well as extensive experience in community affairs. AAFS is among the first leading social service organizations in the Southwest suburbs established to serve and advocate for Arab Americans within the Chicago land area. AAFS’s mission to change and impact the quality of life by serving and building stronger and healthier generations of Arab Americans in our communities has created a profound impact on the lives of thousands of individuals and families. Nareman received her Bachelors of Science in Psychology from University of Illinois at Chicago (UIC) in 1999. In 2006 she graduated with a Master’s of Science in Public Services Management from DePaul University. Learn more.
Yvette Castaneda, PhD
Dr. Castañeda is a Community Engaged Scholar at the University of Illinois. She identifies within the community-based participatory, action oriented research community grounded in qualitative and interpretive methodologies from the field of cultural, pedagogical, and interpretive kinesiology. She uniquely combines her foundation as a community-based investigator in health and employs techniques from ethnographic experimental writing, autoethnography, poetic representation, critical ethnography, and performance ethnography in her work and practice. Her research centers on health equity where her commitment to community has spanned across her research. This year, she successfully defended her dissertation, “Performing feminist possibilities: Autoethnographic praxis in kinesiology and community health,” to receive her PhD from the Department of Kinesiology and Community Health. She is a lecturer in the same department at the University of Illinois at Urbana-Champaign and a Research Associate at the University of Illinois at Chicago.
11:00 am -12:30 pm Tensions Between Academic Life and Community Engagement
This panel will focus on the tough decisions academic researchers may face when they partner with communities to conduct research.
Moderator: Emily Anderson, PhD, MPH, Associate Professor, Loyola University Chicago Neiswanger Institute for Bioethics, and Co Director of RRCEP at UIC-CCTS
Dr. Anderson teaches research ethics and responsible conduct of research to graduate and medical students. Her areas of interest and expertise include researcher and physician professionalism and misconduct; ethical issues in research with vulnerable populations; informed consent; institutional review board (IRB) policy; and the application of qualitative research techniques to the study of research ethics. Dr. Anderson has published articles in the American Journal of Bioethics, Ethics and Behavior, Journal of Law Medicine and Ethics, Academic Medicine, Accountability in Research, and the Journal of Empirical Research on Human Research Ethics (JERHRE). She serves as associate editor for JERHRE, Narrative Inquiry in Bioethics, and AJOB Empirical Bioethics. She also has over ten years of experience serving on six different IRBs and frequently presents at conferences including the American Society for Bioethics and Humanities (ASBH) and Public Responsibility in Medicine and Research (PRIM&R). Dr. Anderson has also been a co-investigator on several federally-funded research and educational projects. Learn more.
Yamile Molina, PhD, Assistant Professor, Community Health Sciences Division; Faculty Affiliate, Center for Research on Women & Gender; Member and Academic Partner, UI Cancer Center
Dr. Yamilé Molina, is an assistant professor within the Community Health Sciences Division at the School of Public Health, Faculty Affiliate within the Center for Research on Women and Gender, and Academic Partner/Early-Stage Investigator for the University of Illinois–Chicago (UIC) Cancer Center’s Office of Community Engaged Research and Implementation Science. In this position, Dr. Molina works to eliminate cancer disparities via developing, testing, and evaluating multilevel interventions, and supporting trainees from marginalized and resilient communities in cancer research. Her current NCI K01- and R21-funded studies focus on the social network consequences of evidence-based intervention approaches, including education and navigation. Learn more.
Jennifer Hebert-Beirne , PhD, MPH, Assistant Professor, UIC SPH, Community Health Sciences
Dr. Hebert-Beirne’s research interests include: community health with a focus on Chicago community areas, structural and social determinants of health, adolescent and women's sexual and pelvic health, and community-based approaches to improve health equity and social justice for low income and oppressed populations. Learn more.
1:00-2:30 pm Negotiating Ideological Differences Between Researchers and Community Partners
This panel will focus on strategies for approaching heated disagreements with your community partners – about the evidence/best practices, study design, or study findings and whether/how to disseminate them.
Moderator: M Lucas, PHD, MBE, MS, MA, RN, Assistant Professor, UIC College of Nursing
Dr. Lucas is an academic bioethicist with interests in health inequities and health humanities. They received an MA in religious and cultural studies from Union Theological Seminary in the City of New York and a master’s degree in bioethics (MBE) and PhD from the University of Pennsylvania. Dr. Lucas’ current research projects center on identification and enactments of unconscious racism in clinical settings. Their approaches to this work include centering patients’ narrative voices as the definers of unconscious racism and investigating approaches to dismantling the transmission of learned, enacted unconscious racism in health education settings. Their use of narrative as method and ethics includes focusing on writing, eliciting, and contextualizing narratives to address, highlight, or otherwise inform a research, clinical, or pedagogical question. Narrative ethics in their work makes apparent the actors’ positionalities within structural racism and white supremacy while simultaneously identifying stories and positionalities within dominant and non-dominant narratives. Dr. Lucas’ work (a) finds, records, and highlight these narratives followed by (b) contextualizing them for healthcare establishments (education, research, practice) in order to (c) mobilize compelling narratives that will work toward policy change. Learn more.
Dennis Watson, PhD, Associate Professor, UIC Department of Medicine
Dr. Watson is an Associate Professor in the Center for Dissemination and Implementation Science in the Department of Medicine. He received his PhD in sociology in 2011 from Loyola University Chicago. His primary research interests focus on the development, implementation, and evaluation of behavioral health services. His work is both informed by and conducted at different levels of collaboration with various community partners. He has served as Principal Investigator of a number of federally-funded studies (i.e., NIH, SAMHSA, CDC). A significant body of his work has been conducted in collaboration with the Midwest Harm Reduction Institute and focuses on the Housing First model of permanent supportive housing for people experiencing chronic homelessness. He has also served as Principal Investigator for several studies conducted in collaboration with the Indiana State Government and was former Chair of the Indiana State Epidemiology Outcomes Workgroup. Learn more.
Lisa Kuhns, PhD, Research Associate Professor, Northwestern University Feinberg School of Medicine
Dr. Kuhns’s primary areas of research interest are prevention of behavioral transmission of HIV infection and promotion of health and wellness among HIV infected adolescent and young adult populations, including sexual and gender minorities. Dr. Kuhns has been involved in the development of practical and scalable interventions across the HIV care continuum. Learn more.